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Della Henson’s Story
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This story is about my 16 year old special needs son. Devin was born full term 8lbs 4 ozs. He had afixia at birth and was born dead. His algae scores were 0-1-5. His lungs collapsed, swollen his bowel, and lost all natural reflexes. He was transferred to a children’s hospital. On the way to the children’s hospital, they thought he was having seizures....

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A’Lisha McKinney’s Story
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I have lived in fear for most of my life, and I was tired of it. I wanted to live. When I was 10 months old, I got a hold of a dry cleaning bag and suffocated and completely stop breathing. My brain began to swell and the doctors prepare my family for my death. However that did not happen or I wouldn’t be...

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Jennifer Sherry’s Story
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I started having seizures when I was 15. I got sick and thought it was the flu because a bunch of my friends were sick. One night, I got up confused.  Hearing my mom, I went to the stairs and had a grand-Mal seizure. I had temp of 104. I was diagnosed with viral encephalitis which is inflammation of the brain. They put me...

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Vickie May’s Story
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The worst day of our lives: Father’s Day 2013! My grandson had his first seizure, then another on the way to the hospital. The hospital at first wasn’t sure until he had another one there! So they sent him to Rainbow and Babies Hospital in Cleveland Ohio. He had a couple more there they gave him medicine and said he would be alright and...

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Amber Paugh’s Story
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Hello, My name is Amber and I have a 7yr old daughter who was diagnosed with Rolandic epilepsy in June of this year 2014. One morning I was waking up my daughter for school and she rolled over and went into a grand-mal seizure. I was so terrified because I have never seen a seizure like that before. I rushed my daughter to the...

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ThaoTam Tran’s Story
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I started having epilepsy when I was 1 1/2 year old. It’s been 22 1/2 years now that I have them. I tried so many seizure medications and all the surgeries in Nebraska they had but none of them is helping my epilepsy. I had brain surgery in year 2010 and VNS Surgery in April 17, 2013....

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CJ’s Story
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CJ’s Story

Oct 6, 2014 by

I had my first seizure later in life it was when I was 25. Their was no obvious reason for me to start having them. After a long battle and strong testimony, I have them under control with medicine. I started with medicine and was added doses until I was told I was maxed out, so they wanted to look at my brain 1...

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Connie Howland’s Story
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Wow, where to begin. I have a handsome baby boy well not a baby anymore. Brayden was just 1 and 1/2 when he became very sick. No one can tell us if his epilepsy came from him being sick or not but anyways. He was 1 and 1/2 when he ended up with a massive infection inside his right eye and influenza A with...

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Barbara Bavec’s Story
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Hi my son is 3 years old and he was diagnosed with epilepsy at 1 years old!! His eeg and MRI came back normal. He takes medication to control them but still has seizures sometimes..we are still trying to find out why he has epilepsy, but we may never know why that’s the hardest part not knowing…I would love to be involved in any...

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Stephanie LeGros’s Story
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Hi my name is Stephanie I’m 25 years old and I’m a mom of 3 special needs boys. I was diagnosed with epilepsy when I was 13. But see I’m different than most epileptic’s I have a normal mri and a normal eeg no one knows how or why. My oldest was diagnosed at the age of one after having a 4 hour seizure...

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Lisa Hadley’s Story
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I was diagnosed with Epilepsy six years ago. I had to have surgery for it, then I went into a coma for three months. I had to learn how to talk, walk, eat all over again. They have no clue why I have the seizures, nor do they still. I was doing so good, I was going back to school for my BA, going...

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Max Murphy’s Story
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Hey guys, my name is Max and was born and raised in Chicago, IL. My epilepsy… It all started in 6th grade. This is when my teachers and family noticed that I would not always respond or forget what we were talking about. Went and got an EEG, which showed that I was having partial seizures. Being diagnosed with Epilepsy at that age didn’t...

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Allison Heberlein’s Story
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My name is Allison Heberlein and I was diagnosed with juvenile myoclonic epilepsy (JME) when I was 16. I had my first grand mal seizure one morning before school during my junior year of high school. I was having the typical symptoms of JME (arms twitching, legs buckling.. soon after I woke up in the morning) for about a year and a half before...

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Sheila K’s Story
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How and when did epilepsy first touch my life? What difference does epilepsy make for me, my family, friends and community? I was first diagnosed with epilepsy at the age of 10, almost 41 years ago…gran mal seizures. I have been so fortunate that I have been seizure free for over 30 years. Still on medication and still dealing with all the side effects,...

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Jennifer’s Story
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My perfectly healthy, extremely athletic son Dezmond’s first seizure was at the age of 15 on June 25, 2010 in the back seat of a car north of Santa Fe, about an hour and a half away from where I was in Albuquerque at the time. I received a panicked phone call from my boyfriend at the time” your son is foaming at the...

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Crissie T’s Story
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Seems like just yesterday Bailey was 18 months old..we were at Shands hospital after our very first Tonic-clonic “grand mal” seizure that lasted over 4 1/2 min from the time I saw it! (I was driving and she was sleeping and like most mothers .. Once they are sleeping .. YOU DRIVE) well since then things have changed.. My rear view mirror stays on...

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Carol C’s Story
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Carol C’s Story

Aug 29, 2014 by

My story of strength is a story of my dad. His name was Rex. He was the best dad anyone could ever ask for. I was his first born child and his only daughter. Needless to say. I was Daddy’s Little Girl!!!! This is HIS STORY! In 1976 he started having ‘spells’. The family doctor treated him for inner ear infection. His ‘spells’ went...

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Amanda F’s Story
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My names Amanda, and I’m 20 years old and a Junior in college. I was diagnosed at age 7 and have been battling Epilepsy for now almost 14 long years. I have been hospitalized many times. Not only do I have Grand-Mal seizures but I also have Partial/Complex. Living with Epilepsy at such a young age was truly the hardest thing I thought I...

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Kimberly H.’s Story
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Epilepsy is a war that I have been fighting for years. I feel lately as though I am fighting an invisible brain ninja. I really don’t like to talk about having seizures, but I have to. I have a job, a family and a life that is moving at hyper-speed, it seems. There have been long spans where I have been great for a...

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Sarah J.’s Story
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I think I was 14 when I had my first grand mal seizure. I was in a public bathroom (alone) and standing infront of the mirrors. Suddenly my vision was a foggy blue and everything looked like it was shaking and goin upward! Turned out it was me shaking, and falling down, haha. Oh the crazy paths my life has taken since then. I...

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Allyson R.’s Story
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I was diagnosed with epilepsy when I was six months old. At that time they were just petit mal seizures. I was always an active girl and didn’t let the seizures slow me down. When I turned 14, my seizures went totally out of control. I started having grand mal and petit mal seizures. I lost count of how many times that I was...

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Leann R.’s Story
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Lukuz Rilea Gelb born july 29,2008 healthy baby boy and handsome. On september 29, 2008 he went to the dr for his 2 month shots and check up and got a clean bill of health. sept. 30, 2008, I left to work and he was sleeping in his crib perfectly fine. I got home from work that night to find my son gasping for air every...

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Javier B.’s Story
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Well, I have had seizures since I can remember! I am 33 years old now, and frankly I have had to many drops on me had them in school, walking to a corner store, in my bedroom sleeping – its a scary thing. Honestly I have never seen a actual seizure occur. I believe it might just break me down more. I am young man...

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Sandra G.’s Story
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Hello my name is Sandra (aka Sandy), and I am a walking miracle to be Alive. In July 8 2000 I was in a hit and run car accident I suffered brain injury face and head laceration skull a jaw fractures. Shortly after I was diagnosed with PSTD, chronic headaches and epileptic seizures. I am a mother of 4 and have struggled to see...

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Kendra D.’s Story
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After graduating high school my seizures began spiraling out if control. I was having them 3-5 days a week and multiple times a day. I wasn’t responding to almost every AED out there. My medicine was being changed 1-2 times a month. This continued for almost 2 years. I almost lost my job because the side effects or the medicines and them being changed...

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Claudia S.’s story
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I was diagnosed at age 50(12 yrs ago) with complex partial seizures. My driving rights were taken away that same morning and my life was forever changed. the great part was now i was being treated for the seizures I had been having for yrs and didn’t know what they were. i now have 3 different types of seizures and for now am not...

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Danielle D.’s Story
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Hello my name is Danielle. I started having seizures in 2010. I woke up one morning not feeling well at all. I sat up on the edge of my bed and automatically got sick all over my floor. I got up to walk to the kitchen so I could clean it up. On my way back to my room I became extremely weak and...

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Victoria Holland’s Story
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I was born with refractory epilepsy and I have been on all epilepsy drugs! AT THE MOMENT ON KEPPRA 3000 MG A DAY ZEBINIX AND clobazam! I have 49 very chronic and complex health problems, and am on 70 meds a day, including having genetic degenerative disc disease. I have all the symptoms an 80 year old would have on the inside, but look young on the outside....

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Jennifer’s Journey
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THIS MY JOURNEY: Meet Epilepsy . Let me introduce you. It does not care about your age, your race, your religion , your job. It does not care if your driving , sleeping, showering, eating, walking the dog. It does not care if your alone, or married, if you have children or if your pregnant. It does not care if you are famous, rich...

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Sarah Potter’s Story
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I sank into depression and lashed out with some wicked anger when my drivers license was taken away. I was having multiple seizures per week, the ‘big kind’ and had recently had one at a most inopportune time, tumbled down the stairs and was using a cane to get around due to injuring my hip. I felt like my life was falling apart. I...

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