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Lisa Seveins’ Story

Posted on Nov 4, 2014 by in Story |

Hi! I am a 47 year old woman with a long history of medical problems.

I was born with an rh incompatibility problem. I am legally blind in my right eye because of my premature birth. At age 7 I was diagnosed with type 1 diabetes. It was a troublesome disease. I was in the hospital a lot!

I can say that every major holiday I have been in the hospital at least once in my lifetime. I continue to have problems and am classified as a brittle diabetic. Two years ago September I had a case of shingles. It landed me in the hospital with the complication of diabetic ketoacidosis and an allergic reaction to one of the anti viral meds. I spent 14 days in the hospital in the most excruciating pain, that I begged for death.

In the midst of that I experienced my first seizure. I have seizure clustters now. But at that time, for two days I seized every 45 minutes, until they were able to slow it down. I have had my share of doctors who don’t know what to do. Seizures aren’t supposed to happen with shingles on the body.

After two years I finally found an epileptologist willing to help. She suspects my seizures started related to the pain I was going through and may have triggered a latent brain injury, leading to epileptic seizures as well. My seizures still come in clusters, now down to one a week, absence seizures not included.

It is an improvement for sure! I am currently having a seizure and diabetes alert dog trained. I am actively fundraising and making progress, even if it is slow. I am looking forward to her improving the quality of my life by letting me know when my sugar is dropping (a seizure trigger) or if she senses a seizure coming. And just having that little bit of reassurance will make a huge difference for my family as well. Seizures happen for many reasons, in many types and intensities. No two people are exactly the same. But we share the common experience of dealing with our medical situation and educating those we can.

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