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Emily Sian Donoghue From the UK Is A Winner!
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My name’s Emily Sian Donoghue, I’m a 22-year-old living in England, turning 23 this year. I am working hard to keep up a growing community of people who wish to support people living with Epilepsy and associated conditions. I am an Epilepsy advocate working to share my own story, experience with different treatment options and I aim to offer invaluable support to other epilepsy...

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Kadie Hernandez’s Story
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I was diagnosed with epilepsy in 2011 when I was 22, I am 25 now. The seizures started shortly after I had my first born. I was at work on break, and had a grand mal seizure (Tonic Clonic). Since then, I have had about 8 grand mal seizures at work. We are still working on new medicines to control the seizures, but none are...

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Rhonda Lawrence’s Story
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Our daughter and sister, Hannah has battled seizures for nearly 10 years, due to the encephalitis virus. Through countless medicine changes and 2 brain surgeries, she still has a smile on her face and is determined to beat this life changing ordeal. She never complains and is an inspiration to those around her. Never does she shy away from discussing her situation to others...

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Carmen Estrada’s Story
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My daughter is 7 years old and has had epilepsy since she was 1 month old. She has been on the ketogenic diet which controlled her seizures, and is now down to one medication and hasn’t had a seizure in almost 4 years! She’s made great strides and major improvements. She’s a fighter, determined and strong. She’s smart kind and sweet as can be….always smiling...

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Michelle Hernandez’s Story
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Hello my is Michelle and I am the founder of the turning the world purple foundation. I am 29 years old and from Louisiana. I was diagnosed with epilepsy at 11 months old. They were mostly tonic-clonic fever related. I also suffered complex partial seizures, but I did not know that they were seizures then. I would feel funny and kind of space out...

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Jason Hughes’ Story
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My name, is Jay Hughes, I am 39 years old, and I have had epilepsy for 22 years this week! I will be 40 next Friday.  It all happened on November 5th 1992, at 10.14am, and it was a Thursday – I remember that. It was just a normal day working as a roofing laborer in St. Annes, just outside Blackpool. I stepped off the roof on...

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Julianne Raymond’s Story
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My name is Julianne Raymond. The picture that I added is of me, my mother, and little brother the day after I had my first tonic-clonic seizure. I was 16 at the time and on vacation in Denver, Colorado. I had the seizure as soon as we got to our hotel room. I was immediately carted to the hospital and hooked up to an...

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Briana Seymore’s Story
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I had my first seizure at ten years old while at a birthday party. I never knew the course my life would take after having that for seizure. My family and I knew virtually nothing about epilepsy until I was diagnosed three years ago. When they asked us to come in for a routine EEG, we thought it would be Normal, and we would...

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Roxanne Olmstead’s Story
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Hi, I am 47 years old and started having seizures when I was 16. It has taken many years to get control over my seizures, but they are still not completely controlled . When I was in my 20’s I had 19 tonic clonic seizures in 1 hr. I wound up in a coma for two weeks and had to relearn to talk, and...

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Lisa Seveins’ Story
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Hi! I am a 47 year old woman with a long history of medical problems. I was born with an rh incompatibility problem. I am legally blind in my right eye because of my premature birth. At age 7 I was diagnosed with type 1 diabetes. It was a troublesome disease. I was in the hospital a lot! I can say that every major...

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Christine Hines’ Story
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My 15 year old daughter Mikayla started to have headaches about 4 years ago, but before that she was a daydreamer – or so we thought… We didn’t have a clue that she was actually having absence seizures since the age of 2. This past summer she finally was seen and had an MRI/MRA done after 2 years of trying to get her pediatrician...

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Alicia Wiley’s Story
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I had my first known seizure in October of 2013. I wasn’t feeling well for a few hours before and as I went to put something in the sink, I launched out of my wheelchair and had four back to back grant mals. My parents called 911 and medication was needed to stop the seizures. I was admitted to the hospital that night and...

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Anna Omness’ Story
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One morning, toward the end of my 6th grade year, my two younger sisters found me unconscious on the bathroom floor. I do not remember anything up until waking up surround by my family and two EMT’s. After regaining consciousness I was brought to a nearby hospital where I underwent several test. Days later I meant with a neurologist, and I was introduced to...

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Olivia Rowan’s Story
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I was diagnosed with Epilepsy when I was in fourth grade, in 1983. I had Petite mal seizures several times a day. I experienced this for the next seven years. I was burdened with medication and many trips to the hospital. Things were hard and difficult . But we are strong! It changed my life so much, but we fight back and strive for a...

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Lester Taulbee’s Story
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I began having seizures at the age of 19. They first began with auras. I actually liked that feeling after a while. I didnt realize the underlying problem. I began wrecking my vehicles. I began having more and more seizures that were noticeable to those around me. The auras had turned into full seizures that I didn’t remember afterwards, or even know that it...

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Jeanine Hansen’s Story
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My daughter, Taylor, had her first seizure at 21 months one random June morning. Of course, it snowballed from there with Tonic-Clonics clustered every couple months or so. After MRI, EEG, and a few appointments, she was placed on Keppra for the next 3 years. It worked okay, but a breakthrough seizure would sneak up every once in a while. After increasing her dose...

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Turon Hayes’ Story
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I began having seizures after my kidney transplant in 1996. They’ve been controlled on various medicines. I’m currently on two medicines that have been helpful. Epilepsy is scary and my seizure range from grand mal to petit mal. My family was a little worried about me living alone, as was I, but I’m keeping up with my neurologist, knowing and avoiding triggers, and staying...

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Rebecca Rees’ Story
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I had my first seizure when I was 13 on a camping trip. The ER doctor said I was dehydrated and I should be fine, but I had 3 more that night and I don’t remember much after that. I got a new “special” doctor and had to take medication. If that wasn’t scary enough, I was given a giant list of things I...

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Heather Meyer’s Story
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Hi, my name is Heather and I was diagnosed with Epilepsy at the age of 10. My mom noticed that I was having staring spells in mid-conversation, and when we were playing catch and the ball hit me in the end and I had no clue why they were asking if I was okay! I was put on Depakote. They thought I would outgrow...

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Amber Verhulst’s Story
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Hi my name is Amber and I have a daughter Alyssa who is 8. She has childhood absence epilepsy. We have been dealing with it for about 4 years now and she is on 3 different meds for it and she is still having her episodes. When she has one, she stares of in to space plays and with her fingers. She has no...

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Samuel Busch’s Story
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I was diagnosed at the age of 2 with Medically Refractory Epilepsy. I am now 38 years old, and the longest I have gone seizure free has been is almost 6 months. I know for a lot of people that is a long time, but I have never had the opportunity to drive. I tell my wife all the time that people with the “plastic card”...

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Candra Murphy’s Story
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The day earth stood still. April 2010 was a typical day, like any other for an office admin. I woke up, showered, got dressed, grabbed a bite, and drove to work. I started my day with data entry, plugging in site plans. I felt a bit drowsy, grabbed a cup of coffee & sat back at my desk continuing to complete my tasks. Feeling...

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Amanda Filippone’s Story
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The New Jersey City University women’s soccer team was in the midst of a ball possession drill some 30 minutes before its Sept. 21 game against conference rival William Paterson when Amanda Filippone trotted to the trainer’s table, hoping to loosen her stiff back. A junior midfielder at the Jersey City school, Filippone hopped up on the table and crossed her right leg over...

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Bethany Swecker/Rockwood’s Story
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My daughter Jordyn has a long story and road ahead of her. At birth she was diagnosed with Tetrology of Fallot, a congenital heart defect that would need surgery to correct it. At 3 months old, she had open heart surgery in Denver; a parent’s nightmare when having a baby! By the grace of God, the surgery went fantastic and she recovered within days! Our...

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Pegi Johnson’s Story
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I was born with epilepsy, but I wasn’t diagnosed until I was twenty. I’m forty seven now. My parents didn’t notice how I’ll I was because I had petite mal seizures. Back then people thought the only kind of seizures were grand mal. My parents kept getting notes that I was “daydreaming ” in class. But my story has a happy ending. Once diagnosed,...

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Gordon Gates’ Story
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I was born July 23, 1991, in Richmond Virginia. We moved to Ansted, West Virginia when I was a couple months old. Later, we moved to Oak Hill, West Virginia when I was 10 years old. On July 23Rd, 2003, my 12th birthday, a mosquito had given me herpes encephalitis and I went into about eight tonic-clonic seizures. Since my twelfth birthday, I have had...

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Megan Graham’s Story
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I had my very first seizure in 2009 just before my 19th birthday. I was working at an ice cream place and about to get off of work. I fell out about 10 minutes before my shift ended and woke up to my boyfriend hovering over me and two EMS guys as well. I didnt go to the hospital but they explained what had...

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Jessica Fusch’s Story
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The battle with epilepsy for my daughter, Inara, began while I was 15 weeks pregnant with her. I began to mirror her tonic-clonic and grand mal seizures regularly. I also noticed abnormal fetal movements as she grew. In November of 2011, Inara was born, strong and beautiful. And at 11 days old, she had two ten minute partial seizures back to back. At 4...

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Paige Mullineaux’s Story
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I was diagnosed with epilepsy as well as narcolepsy with cataplexy when I was 21 I’m Paige, I am 24 years old. My case is a tad tricky: I have like 12 types of seizures and they’re completely random! I’ve been having “starring spells” and things all of my life but I had my first grand-mal seizure in my ex -boyfriend’s car in 2008!...

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Kimberly Lambert’s Story
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My story starts at age 15. My mom started to notice me staring off not responding to her calls. She ask the doctors what that could be, but they said it was just me being rebellious. Then later my hand started to twitch and tighten up for periods of time. We asked doctors what that was, but doctors said it was my nerves and...

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